» Research on Persons with Developmental Disabilities Living at Home

Background on Family Support Study

This research represents New Jersey's first statewide study of families caring for relatives with developmental disabilities in their own homes.  This research, conducted by the DD Planning Institute, was based a random sample of 698 families in order to describe the services used and needed by families. Funded by the New Jersey Division of Developmental Disabilities and conducted in cooperation with regional Family Planning Councils, this study also assessed the relative influences of the amount of support time, caregiver stress, and consumer and caregiver characteristics on the utilization and demand for services, adaptive equipment, and home modification.

Living At Home:  Summary Report #1 of Persons with Developmental Disabilities Living at Home in New Jersey (Executive Summary, 3 pages - available for download in PDF format by clicking on title link.)

 

Dawn Hall Apgar, Paul Lerman, Tameeka Jordan
April 2000

The first report provided descriptive information on consumer and caregiver characteristics, service utilization and need, home modifications, cash subsidies, case management, and awareness with the Family Support Councils.  This document was presented to the Family Support Councils to be used to guide planning.

To request copies of the full reports of Living at Home (58+ pages), contact the DD Planning Institute.

Living At Home:  A Closer Look (Summary Report #2 of Persons with Developmental Disabilities Living at Home in New Jersey) (Executive Summary 7 pages - available for download in PDF format by clicking on title link.)

 

Dawn Hall Apgar, Paul Lerman, Tameeka Jordan
August 2000

This report is the second resulting from the state of New Jersey's first major study of services used and needed by families caring for relatives with developmental disabilities in their own homes.  The primary aims of this second report are to:  (1) assess the support time and stress experienced by relatives who were providing care for persons with developmental disabilities living at home; and (2) assess the relative influence of consumer and caregiver characteristics, as well support time and caregivers’ stress, on the demands for services, adaptive equipment, and home modifications.

To request copies of the full reports of Living at Home: A Closer Look (59+ pages), contact the DD Planning Institute.

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